tag:blogger.com,1999:blog-21558474.post4767145373444757374..comments2023-11-02T08:09:02.234-04:00Comments on Her Bad Mother: The Invisible BoyHer Bad Motherhttp://www.blogger.com/profile/03535958887714152413noreply@blogger.comBlogger161125tag:blogger.com,1999:blog-21558474.post-85710650954782149802009-03-01T23:28:00.000-05:002009-03-01T23:28:00.000-05:00Here is the link to what I wrote, maybe someone he...Here is the link to what I wrote, maybe someone here can help them too: http://www.stopscreamingimdriving.com/2009/02/hoping.html<BR/><BR/>Thank you again.carriehttps://www.blogger.com/profile/04038972194323564240noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-77570285163971367232009-03-01T23:27:00.000-05:002009-03-01T23:27:00.000-05:00I feel like such a tool. I read your blog all the ...I feel like such a tool. I read your blog all the time and yet, Kyla had to point out to me after I wrote a post about my friend whose 12 month old son was JUST diagnosed with DMD and is seeking information/support/anything really, that this was the same diagnosis of your sweet nephew Tanner. <BR/><BR/>Sometimes me ol' brain just doesn't connect the dots. <BR/><BR/>I am so thankful that there are others whom I can refer my friend to, such as your sister and her organization - which may offer some solace since they are new to all of this and their son is so, so young. Only 12 months.<BR/><BR/>Thank you.carriehttps://www.blogger.com/profile/04038972194323564240noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-36368552591451033872009-02-11T13:01:00.000-05:002009-02-11T13:01:00.000-05:00I love how honestly and tenderly you write about T...I love how honestly and tenderly you write about Tanner. My sister is 14 years younger than I am and when she was three she was diagnosed with Neurofibromatosis and a brain tumor. She was blind by age 5 and now at 25 has the mentality of a 7yo. I vividly remember when she became self-conscious about her disability. I remember having lunch with her at school, she was in the 4th grade, and I said hi to a boy who had been at her 8yo bday party. I can smell the room, hear the laughter of the other children and feel my sister's embarrassment and it is almost 18 years later. I've always marveled at the strength of my mother. I now have my own children and my husband was diagnosed with Early Onset Alzheimer's Disease three years ago. The reality is that we all just muddle through the unfairness of life and hope to come out the other side a little more empathetic and kinder towards others. Thanks you for writing so honestly.Kim/2 Kidshttps://www.blogger.com/profile/04207007871205869080noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-71556121264699773022009-01-29T20:17:00.000-05:002009-01-29T20:17:00.000-05:00The photos are stunning, as is the story. The thou...The photos are stunning, as is the story. The thought of Tanner having to suffer any more than he already does truly brings tears to my eyes.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21558474.post-38433223268395386752009-01-29T13:29:00.000-05:002009-01-29T13:29:00.000-05:00Just catching up on some of your blog entries &...Just catching up on some of your blog entries & I read this causing me to cry in my lunch. Just thinking aloud here, but do they have access to a support group for Duchenne's Muscular Dystrophy? If he does not already know other children who have it, it may help to meet some & become friends with them. Just thinking aloud...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21558474.post-28650851471723286972009-01-26T21:00:00.000-05:002009-01-26T21:00:00.000-05:00Your story brought tears to my eyes.I have support...Your story brought tears to my eyes.<BR/>I have supported a child through Save the Children for many years but would increase my contribution to support more children in his community.<BR/><BR/>bmc1978[at]yahoo[dot]comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21558474.post-44710704967768692612009-01-26T14:43:00.000-05:002009-01-26T14:43:00.000-05:00Just wanted to let you know that A close friend an...Just wanted to let you know that A close friend and neighbor of mine has MD and is also on a mission. I give to the foundation several times each year through her. Good luck on your mission. I wish you success.Mama Smurfhttps://www.blogger.com/profile/18156035813578322910noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-10336281252641796772009-01-26T09:24:00.000-05:002009-01-26T09:24:00.000-05:00What an incredibly moving post. I'm not commenting...What an incredibly moving post. I'm not commenting to enter the giveaway, but reading about Tanner inspired my to donate to the cause.The Spicershttps://www.blogger.com/profile/08667011381331956751noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-49974757324898145892009-01-25T23:21:00.000-05:002009-01-25T23:21:00.000-05:00I have a neighbor who has never been married and h...I have a neighbor who has never been married and has no living family nearby. She is an older woman. I so enjoy spending time talking with her but haven't done it in so long. I want to reach out to her and visit and bring a meal and have her over for a meal and just make the fact that she is alone a little bit easier<BR/><BR/>jasonncaryn at yahoo dot comRockin' Mamahttps://www.blogger.com/profile/10601639894828595056noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-27478787948870007692009-01-25T23:19:00.000-05:002009-01-25T23:19:00.000-05:00Don't consider this an entry C - I want to pay it ...Don't consider this an entry C - I want to pay it forward regardless.<BR/><BR/>But just wanted to tell you that he will never be able to hide completely; your words will make sure of that.Mom101https://www.blogger.com/profile/15468524489744839899noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-89444958089055834662009-01-25T23:14:00.000-05:002009-01-25T23:14:00.000-05:00He's so very beautiful, Catherine. I will first hu...He's so very beautiful, Catherine. I will first hug my children fiercely first thing in the morning. My sister in law just lost her husband. I intend to make the additional effort to help her through this time by sharing my children with her, spending time with her, and helping her in whatever ways I can. <BR/><BR/>My thoughts are with you and yours.<BR/><BR/>Mary Davis<BR/>marydaviswrites@gmail.comMaryhttps://www.blogger.com/profile/02301250875925142548noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-61180251115616415162009-01-25T23:12:00.000-05:002009-01-25T23:12:00.000-05:00I have hit the point in Tanner's disease that I ca...I have hit the point in Tanner's disease that I cannot believe it anymore. I try and will myself, not.<BR/><BR/>It is too small this disease, too rare for him. It must dissipate somehow.<BR/><BR/>Guilty as charged. I will seek blindness.<BR/><BR/>The camera is a hope.mo-wohttps://www.blogger.com/profile/10934156423936866994noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-22765903803301440732009-01-25T22:12:00.000-05:002009-01-25T22:12:00.000-05:00I will continue to mentor the people around me. I ...I will continue to mentor the people around me. I was a mentor to a young lady and recently she has gotten back in touch with me. I hope to reunite and start back up with the mentoring . It gives me a sense of pride to know that I was able to lead her down the right path and help her and her family. Thank you for sharing such personal stories that can be hard for some. Also thank you for the chance to win the giveaway :)Marissahttps://www.blogger.com/profile/15463685838800264506noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-42069798587682076782009-01-25T21:30:00.000-05:002009-01-25T21:30:00.000-05:00It's been a while since I last wrote. First of al...It's been a while since I last wrote. First of all, yes SC is South Carolina. <BR/><BR/>So far from everything I've searched through, I can't find a summer camp specifically designed for Muscular Dystrophy in Canada. I'm not giving up yet. I'm looking through some more resources to hopefully find something for Tanner. Please keep us updated and let me know if there is any way I can help.Perksofbeingmehttps://www.blogger.com/profile/10708968006988615833noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-32888982324650259932009-01-25T17:24:00.001-05:002009-01-25T17:24:00.001-05:00Funny thing. My first thought is: I want the phone...Funny thing. My first thought is: I want the phone. My second thought is: I don't need the phone. <BR/><BR/>So don't put me in the pot for it. I will just pay it forward for the opportunity to will the phone. <BR/><BR/>There are so many organizations that I love that need my money. There are people I know who need my help. But this time I am going to do something small and specific: I am giving the next needy person asking for help at a stop light $20. Don't care what they do with it. Not judging. Just giving.<BR/><BR/>Thanks for giving us a reason to stop and ask the question, how can I help today?<BR/><BR/>And please keep telling Tanner's story. I am invested now, and I know I am one among many.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21558474.post-74884786126024226752009-01-25T17:24:00.000-05:002009-01-25T17:24:00.000-05:00Funny thing. My first thought is: I want the phone...Funny thing. My first thought is: I want the phone. My second thought is: I don't need the phone. <BR/><BR/>So don't put me in the pot for it. I will just pay it forward for the opportunity to will the phone. <BR/><BR/>There are so many organizations that I love that need my money. There are people I know who need my help. But this time I am going to do something small and specific: I am giving the next needy person asking for help at a stop light $20. Don't care what they do with it. Not judging. Just giving.<BR/><BR/>Thanks for giving us a reason to stop and ask the question, how can I help today?<BR/><BR/>And please keep telling Tanner's story. I am invested now, and I know I am one among many.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21558474.post-59150074275319056472009-01-25T16:55:00.000-05:002009-01-25T16:55:00.000-05:00It's amazing how little it takes to turn someone's...It's amazing how little it takes to turn someone's day around.<BR/><BR/>Thank you for this. For Tanner, and for all the kids and grownups who are unseen, for reasons of disability or differentness or something yet unlabeled.<BR/><BR/>I'm working on an anthology of writings of mothers with cancer. No profit, no fame. Just giving voice to their words.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21558474.post-71841445837837145742009-01-25T13:32:00.000-05:002009-01-25T13:32:00.000-05:00It hurts to ready Tanner's story; I can barely ima...It hurts to ready Tanner's story; I can barely imagine what it feels like to live it. Your love for him shines through your words so strongly.<BR/><BR/>I recently purchased a necklace with a simple message inscribed on it: <I>I have everything that I need.</I> I'm trying to remind myself of that fact, daily, and to be grateful for the many blessings in my life. Part of that exercise involves thinking of ways to make an impact in other people's lives. So I recently decided to support a local women's shelter with a monthly donation. It's not much but it feels good.<BR/><BR/>Please don't enter me into the draw for the camera, as ours works just fine. I wanted to let you know that I'm loving your pay it forward mantra.Janethttps://www.blogger.com/profile/00567374243896229606noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-64412448891044064282009-01-25T12:07:00.000-05:002009-01-25T12:07:00.000-05:00I keep saying I'm going to make a donation to St J...I keep saying I'm going to make a donation to St Jude's hospital and never seem to get around to it. I promise to make that donation and also a donation to Autism Speaks since my grandchildren have autism.Conniehttps://www.blogger.com/profile/14797284645541667891noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-50526840122354804712009-01-25T11:10:00.000-05:002009-01-25T11:10:00.000-05:00I've been on the receiving end of paying it forwar...I've been on the receiving end of paying it forward. It's a humbling, amazing thing. Two things our family does to pay it forward are: 1)make meals for families who are dealing with hospitalization, new babies or some other major change and they need help and 2)we sponsor a child through a international organization.<BR/><BR/>Prayers for Tanner and his family. <BR/><BR/>bnmga(at)sbcglobal(dot)netKellyChttps://www.blogger.com/profile/03175270138038227985noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-62141126240879380702009-01-25T10:42:00.000-05:002009-01-25T10:42:00.000-05:00Wow. I wish we didn't always need reminders about...Wow. I wish we didn't always need reminders about how tenuous life is. <BR/><BR/>I plan on donating a chunk of money to organization that supports families who are dealing with cancer. <BR/><BR/>I wish you and yours the best!Brookehttps://www.blogger.com/profile/14674735841575589260noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-13471712847619382592009-01-25T06:41:00.000-05:002009-01-25T06:41:00.000-05:00Wow. There's no way I can come close to expressin...Wow. There's no way I can come close to expressing my thoughts and feelings as eloquently as others here have already done. Just know though, that my family is praying for Tanner and your whole family too. He sounds like such a beautiful, precious guy.<BR/><BR/>As for the paying it forward. . . I am truly amazed at some of the things my own kids do and say. Just this week, my six year old came to me and said 'Mommy, what if I saw a person walking and they had no coat and they were cold and had no money and couldn't get a coat? Mommy, can I take a dollar out of my bank and figure out a way to give it to someone who doesn't have any money?'<BR/><BR/>Yeah. I almost cried.<BR/><BR/>To think that completely on her own, she came up to me and asked what she could do to help someone who doesn't have!<BR/><BR/>So my pay it forward is helping her follow through with her idea to give to others who are in need this winter. We're doing a coat, hat, and glove drive and are donating all the items to our local homeless shelter. I'm optimistic that this will be a huge success and we'll be able to do it every year. :-)<BR/><BR/>BTW, I didn't see in your post where we were supposed to give our email addy in our comment. Do you need it? Thanks!<BR/><BR/>And give Tanner some extra love puffs (that's what we call hugs, kisses, and 'I love you!'s around here) from us.just momhttps://www.blogger.com/profile/04892531299378963089noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-50712150373778711072009-01-25T04:30:00.000-05:002009-01-25T04:30:00.000-05:00I just recently helped a dear friend donate some t...I just recently helped a dear friend donate some toys and books to the Toy Library at the Huntington Hotel. It's a subsidized hotel around the corner in downtown L.A. This is a fairly bleak place and has 22 families and sometimes children in these areas are forgotten. Well at the Huntington - not anymore!!!<BR/><BR/>Here's an article about it: http://ladowntownnews.com/articles/2008/09/08/news/09-08-08-news05.txt<BR/><BR/>It was really nice to do something for our favorite people - kids! Paying it forward creates such magic in their lives! It would be so special to donate the phone to the Huntington or even to our neighborhood literacy project!<BR/><BR/>You are truly an inspiration!<BR/><BR/>Thank you! : )))<BR/><BR/>Leah.<BR/><BR/>leahita[at]gmail[dot]comLeahhttps://www.blogger.com/profile/01882007700555508250noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-85197685278751531592009-01-25T00:48:00.000-05:002009-01-25T00:48:00.000-05:00My heart goes out to you, Tanner is an inspiration...My heart goes out to you, Tanner is an inspiration. As a pay it forward I want to make regular donations this year to help bring alittle more happieness in these hard times. Thanks<BR/>april_epperson(at)yahoo.comUnknownhttps://www.blogger.com/profile/02349153331063144615noreply@blogger.comtag:blogger.com,1999:blog-21558474.post-75990960794943815832009-01-25T00:08:00.000-05:002009-01-25T00:08:00.000-05:00I've closed this post a few times without commenti...I've closed this post a few times without commenting because I couldn't come up with something meaningful enough to say. Came back because it was more important to say it anyway:<BR/><BR/>Much, much love to Tanner, and your whole family.Lady Mhttps://www.blogger.com/profile/13360693450146358247noreply@blogger.com